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Oxford textbook of palliative care for children
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ISBN: 9780199595105 Year: 2012 Publisher: Oxford Oxford University Press

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The first edition of this book was the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach. The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not possible. It encompasses the physical management of symptoms such as pain and nausea, as well as social issues such as accessing appropriate education, emotional issues such as techniques for communication, and spiritual issues such as feelings of guilt and isolation. The book suggests that if we are to maintain the quality of life for a child it is essential to recognise all these dimensions and try to address them. This can only be done by recognising the skills of a wide range of professionals and working together in ways that are not always intuitive to any one discipline. It explores the multidimensional and holistic nature of care for the dying child. Those working in paediatric palliative care recognise that all human experience has emotional, psychological and spiritual impact as well as physical, and this book offers the essential information needed for those involved in paediatric care to find ways of providing support in all of these areas. Comprehensive in scope, exhaustive in detail, and definitive in authority, this second edition has been thoroughly updated to cover new practices, current epidemiological data and the evolving models that support the delivery of palliative medicine to children. Paediatric palliative care is now developing in countries with differing health care systems, and being adapted to suit individual illnesses and the varying resources and geography in different parts of the world. This book is an essential resource for anyone who works with children worldwide.


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Musical encounters with dying : stories and lessons
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ISBN: 0857007483 9780857007483 1299736947 9781299736948 9781849059367 1849059365 Year: 2013 Publisher: Jessica Kingsley Publishers

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Music therapy can be a profound physical, emotional and spiritual support at the end of life. This book looks at a wide variety of cases, explaining how music therapy can be used effectively. It highlights particular components of working with this group, such as creating a therapeutic relationship, helping patients to reach final goals, working within cultural contexts and dealing with difficult emotions, all within the parameters of the musical experience. It also explores the unique needs of people with disabilities or mental illness, and how to support the families of the dying. Therapeutic and philosophical insights related to the dying process are included.This will be a supportive and insightful guide for anyone working with people who are at the end of life, especially music therapists and other complementary therapists, caregivers, hospice workers and medical professionals.


Book
Palliative care for infants, children, and adolescents : a practical handbook
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ISBN: 1421402130 9781421402130 9781421401485 9781421401492 1421401487 1421401495 Year: 2011 Publisher: Baltimore Johns Hopkins University Press

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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.


Book
Oxford textbook of palliative medicine
Authors: --- --- --- ---
ISBN: 9780198821328 9780192554567 0192554565 9780191860775 0191860778 9780192554550 0192554557 Year: 2021 Publisher: Oxford Oxford University Press

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This sixth edition of the Oxford Textbook of Palliative Medicine takes us now into the third decade for this definitive award-winning textbook. It has been rigorously updated to offer a truly global perspective, highlighting the best current evidence-based practices, and collective wisdom frommore than 200 experts around the world.This leading textbook covers all the new and emerging topics, updated and restructured to reflect major developments in the increasingly widespread acceptance of palliative medicine as a fundamental public health need. The sixth edition includes new sections devoted to family and caregiver issues,cardio-respiratory symptoms and disorders, and genitourinary symptoms and disorders. In addition, the multi-disciplinary nature of palliative care is emphasized throughout the textbook, covering areas from ethical and communication issues, the treatment of symptoms, and the management of pain.https://www.standaardboekhandel.be/p/oxford-textbook-of-palliative-medicine-9780198821328

A practical guide to palliative care
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ISBN: 9780781763431 0781763436 Year: 2007 Publisher: Philadelphia Wolters Kluwer


Book
Paediatric palliative care
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ISBN: 9780199236329 0199236321 Year: 2010 Publisher: Oxford Oxford University Press

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Looking after children with life-limiting conditions can be very difficult for both the parents as well as the health care professionals who may only see a few cases in their career. Paediatric Palliative Care is full of easily-accesible, detailed information on medical conditions and symptoms and includes specific management plans.

Keywords

Terminally ill children --- Palliative treatment --- Palliative Care --- Terminal Care --- Child --- Infant --- Pain --- Care --- methods --- drug therapy --- Child. --- Palliative Care -- methods -- Handbooks. --- Palliative treatment -- Handbooks, manuals, etc. --- Terminal Care -- methods -- Handbooks. --- Terminally ill children -- Care -- Handbooks, manuals, etc. --- Signs and Symptoms --- Patient Care --- Sensation --- Age Groups --- Investigative Techniques --- Neurologic Manifestations --- Publication Formats --- Therapeutics --- Health Services --- Psychophysiology --- Nervous System Physiological Processes --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Pathological Conditions, Signs and Symptoms --- Persons --- Nervous System Diseases --- Publication Characteristics --- Psychological Phenomena and Processes --- Health Care Facilities, Manpower, and Services --- Diseases --- Nervous System Physiological Phenomena --- Named Groups --- Psychiatry and Psychology --- Health Care --- Musculoskeletal and Neural Physiological Phenomena --- Phenomena and Processes --- Handbooks --- Drug Therapy --- Methods --- Medicine --- Health & Biological Sciences --- Pediatrics --- Palliatieve zorgen --- Pediatrie --- Palliatieve zorg --- Terminally ill children - Care - Handbooks, manuals, etc. --- Palliative treatment - Handbooks, manuals, etc. --- Palliative Care - methods - handbooks --- Terminal Care - methods - handbooks --- Pain - drug therapy - handbooks


Book
Bevroren beeld: zorg voor de laatste levensfase
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ISBN: 9789460010491 Year: 2009 Publisher: Antwerpen Vrijdag

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Dokter Marc Cosyns, een autoriteit op het vlak van de ethische en medische aspecten van begin en einde van het leven, schrijft in Bevroren beeld aangrijpend over de laatste maanden van drie van zijn patiënten. Op de meest serene en empathische manier en zonder vals sentiment schrijft Cosyns hoe onmogelijk het is te sterven, of hoe mogelijk. Hij verweeft de foto's van Julien Vandevelde in zijn verhalen en voorziet ze van poëtische aantekeningen. De van het leven doorregen foto's en films van Julien Vandevelde maken van het boek een nog aangrijpender, natuurlijker document. Samen met Marc Cosyns maakte hij de veelbesproken gelijknamige tentoonstelling. De films worden op een unieke manier samengebracht op een dvd waarop ook een authentieke audio-opname van Rachel, de avond v r haar geplande afscheid.


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Een bed voor de dood : sterfstage op een palliatieve eenheid
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ISBN: 9789461311221 Year: 2012 Publisher: Leuven Van Halewyck

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Enkele maanden nadat haar vader overleed op een palliatieve eenheid, stapt auteur Gretel Van den Broek opnieuw de gang binnen. Ze wil luisteren, portretteren, meeleven, bevragen, begrijpen. Ze probeert woorden te zoeken voor het leven in de dagen voor de dood, ze noteert de - schijnbare - details, ze graaft naar antwoorden of naar meer nauwkeurige vragen.Een bed voor de dood is een aangrijpende documentaire. Dit boek schuwt de waarheid niet, spreekt over lijden, pijn, euthanasie en palliatieve sedatie, maar polariseert nooit.Een goede palliatieve zorg gaat immers niet over meningen, maar over het intens aanvoelen van mensen.Bron : http://www.vanhalewyck.be


Book
Kies en bemin je keuze : zelfzorg bij je levenseinde
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ISBN: 9789401401319 Year: 2012 Publisher: Tielt Lannoo

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Ann Vermeiren begeleidde vele mensen op een keerpunt in hun leven. En dan krijgt ze zelf borstkanker...De extreme omstandigheden dwingen Ann om de principes die ze haar clienten bijbrengt, ook bij zichzelf in de praktijk om te zetten. Haar belangrijkste houvast: ?Kies en bemin je keuze.? Als je durft kiezen en leeft naar je keuzes, valt er meteen een pak stress weg en voel je je vrij. En dat deed Ann. Toen bleek dat de diverse ingrijpende therapieen de kanker niet konden verjagen, besliste ze om de behandeling stop te zetten. Om zichzelf en haar omgeving in alle rust voor te bereiden op het afscheid, maar ook om nog volop van elke dag te kunnen genieten.


Book
Nu en straks : handleiding bij het beeldboek
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ISBN: 9789044130287 9789044130300 9789044130294 Year: 2013 Volume: *3 Publisher: Antwerpen Garant

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Het thema 'palliatieve zorg, ziekte en doodgaan' is voor iedereen een confronterend en delicaat thema. Wat kan er nu, hoe moet het straks en hoe kunnen we het mogelijk maken dat mensen genieten van het 'nu en straks', ook al is er weinig perspectief?Het beeldboek kan worden gebruikt om aan kinderen en volwassenen uitleg te geven over de thema's 'ongeneeslijk ziek zijn', 'palliatieve zorg' en 'sterven' en om deze delicate onderwerpen bespreekbaar te maken. Met het beeldboek kan worden gepraat over het eigen ziekteproces of over de ongeneeslijke ziekte van een familielid, een medebewoner, Het is in eerste instantie ontwikkeld voor mensen met een verstandelijke beperking, maar het is ook geschikt voor een ruimer publiek, zoals kinderen of mensen met psychische problemen

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